HD Research

Colorado Clinic Trials

A list of ongoing trials can be found here.

Research Roster

The HD Research Roster computerizes the names of families, including information about the history of HD in the family (family trees) and other related data. This information identifies HD patients and families who are interested in participating in research projects.

US HD Genetic Testing Group

A consortium of HD genetic testing centers around the US that meets yearly to share information and to discuss unusual cases, problems and complications of HD genetic testing (including insurance problems, lawsuits and other test-related issues).

Huntington Study Group

the Huntington Study Group (HSG) is an affiliation of over 50 clinical centers formed to plan and conduct drug trials aimed at treating HD.

Surgical Treatments

An explation of some of the effects and risks involved with surgical treatment of HD.

Scientific Milestones

A history timeline of Hutington’s Disease scientific events.

HDSA Research Cycle

An illustration of the five general different types of research HDSA funds.