News
800 Gather at the National Convention
July 1, 2010 | Uncategorized800 Gather in Raleigh North Carolina to Celebrate the 25th Annual HDSA National Convention
Click here to see the article and photos
June Calendar
May 30, 2010 | UncategorizedCurrent Calendar of Events
Click here to view June’s calendar (pdf)
Bike For the Cure – Coastin’ to Carolina, May 30 – June 24, 2010
April 7, 2010 | UncategorizedCoastin’ to Carolina is an 1200 mile bicycle ride from Bar Harbor, ME to Raleigh, NC for the 25th Annual HDSA Convention (June 25-27, 2010). In 1967, Marjorie Guthrie, the widow of famed folksinger Woody Guthrie, founded the Committee to Combat Huntington’s Disease, which evolved into the Huntington’s Disease Society of America. As in the prior eleven rides, the purpose of the ride remains heightening public awareness of Huntington’s Disease and raising funds for family services and research towards a cure. Click here for details
New Data Point To Huntington’s Disease Hope (NPR)
February 9, 2010 | UncategorizedA study being published Monday (2/8/10) offers hope for those with Huntington’s disease. The Archives of Neurology has a report about a drug aimed at the serious cognitive deficits that people with Huntington’s also suffer. (click here for the story)
Neurosearch Reports Good Results from the European Trial of ACR16
February 8, 2010 | UncategorizedNeurosearch has reported positive results from the MermaiHD study, the European Phase III study with Huntexil® (pridopidine) in Huntington’s disease. The HD community knows this drug by its original designation of ACR-16. (click here for more)
Currently the HART clinical trial to study ACR16 is enrolling in the United States, so for families excited by this news we encourage them to visit HDTrials.org or our interactive Clinical Trial map at http://www.hdsa.org/research/clinical-trials/find-your-closest-clinical-trial.html to learn about how they can get involved in the HART study.
Scientists uncover culprit in Huntington’s disease
June 12, 2009 | UncategorizedJune 2009, WASHINGTON-Scientists have solved a mystery surrounding a horrific illness: Why people with Huntington’s disease harbor a faulty protein throughout their bodies but it destroys only certain brain cells. The discovery may provide a long-awaited target for developing treatments for the incurable killer-and also may have ramifications for more common brain diseases like Alzheimer’s.